When It Rains, It Pours

Well hurricane Isaac is in full effect!!!

No better time to continue my story!

     So after getting out of the hospital for my first tune up, I went home and and continued treatment. It was the end of June when I noticed a big change in my health. Something wasn't right and I started going down hill fast. My boyfriend at the time was leaving for the military and I was completely upset over it. So I just assumed that the reason I was getting sick was because I was so upset and sad about him leaving.

     As the days got closer to him leaving for basic training, I got worse and worse. It was to the point where I threw up every few hours and started getting dizzy. The day finally came to say good bye. We dropped him off at the airport and started the long drive back home. The 3 hours felt like a full day. On the way back I was so exhausted I couldn't even sit up, I laid there with my eyes close feeling like I was going to die. I couldn't eat, my stomach had a horrible squeezing pain that took my breath away. When I finally got home my mom could see how bad I felt she asked if I was okay and if I wanted to go to the ER. That night I woke up every hour feeling so dizzy that I would stubble to the bathroom and throw up. After throwing up I just passed out on the bathroom floor. As the hours went by it got worse. My mom finally had enough and packed a weeks worth of clothes and helped me into the car. Like I said before, we didn't have the best hospital, in fact they know little to nothing about CF. So we rushed to Miami Children's Hospital once again.

From the ER they started an IV, did blood work, and got me into a room. 

By the end of the night they noticed that my skin started turning yellow. 

They rushed me in to ICU 

were I spent the next 11 days.

The last couple of days in ICU

    While I was in ICU I got around 5 IVs, 2 tubes of platelets, 3 bags of blood, and was on dialysis. After running more test they found out that I had pancreatitis and I let it get so far that I was going into renal failure and all my organs were starting to shut down. I don't remember much, the first couple days I was out of it and sleeping most of the time. I remember waking up to my mom sitting in the same tiny chair day after day. I would just lay there listening to her mumble her prayers on my bed side. I went 2 weeks with out eating and lost 14lb. I didn't really notice how bad I was until the day I tried to stand up. I just sat at the edge of my bed, put my feet on the ground, stood up, and took one step. I started feeling dizzy, so leaned against the bed and told my mom to call the doctor. Then I blacked out and couldn't feel anything. I heard the terror in my mom's voice as she was yelling for help. I kept telling her I was okay, but she said "No! You're having a seizure!". Then everything sounded like it was in a tunnel, I told the doctor that I couldn't see him but I could hear him. So after that, the doctor told me that my body has been though too much and I wasn't okay enough to do anything. That's when it hit me.. I couldn't even walk. Was I really that bad??

The first day home from ICU

Finally got home after 15 days in the hospital. 

One of the best feelings in the world! 

To finally be able to eat normal food and just sleep in your own bed!

The yellow & black pills are what cause pancreatitis, Tetracycline

Daily Update: 

Haven't been feeling so good lately. I've noticed I've been coughing a lot more. I just hope these antibiotics are still doing their job. On Friday I get my port placed. Kind of nervous about that still. But I will finally be getting this PICC line taken out which I am more than happy about! Considering that it's been hurting for the last couple of days. I am going to video the before and after of my port for my next post. So wish me luck!!!